Nonprofits›The Desmoid Tumor Research Foundation Inc

Medical Research

The Desmoid Tumor Research Foundation Inc

WOODCLIFF LAKE, NJ

WebsiteView as a funder

Total revenue

$793K

Total expenses

$591K

Net assets

$1.2M

Grants received

$635K

65 grants

EIN

611493017

Tax year

2024

Mission

The organization raises funds to support medical research for desmoid tumors.

Financials

FY 2024

Revenue

Contributions & grants$787K
Program service revenue—
Investment income$45K
Other revenue—
Total revenue$793K

Expenses

Grants paid$51K
Salaries & benefits$346K
Fundraising$132K
Other expenses$194K
Total expenses$591K
Total assets$1.3M
Net assets$1.2M

People

12 listed

NameRoleCompensation

LYNNE HERNANDEZ

EXECUTIVE DIRECTOR

Board

$95K

40 hrs/wk

JEANNE WHITING

PRESIDENT/FORMER EXECUTIVE DIRECT

Board

$7K

20 hrs/wk

NICOLE DEICHERT

DIRECTOR

Board

—

2 hrs/wk

MARIA CROCITTO

DIRECTOR

Board

—

2 hrs/wk

JERROLD MARCH

DIRECTOR

Board

—

2 hrs/wk

RACHEL SITTA

DIRECTOR

Board

—

2 hrs/wk

BARARA ANN SELLINGER

DIRECTOR

Board

—

2 hrs/wk

TOM ALLEN

DIRECTOR

Board

—

2 hrs/wk

DJ CONNER

TREASURER

Board

—

4 hrs/wk

YATING WONG

DIRECTOR

Board

—

2 hrs/wk

MARLENE PORTNOY

CHAIR

Board

—

2 hrs/wk

STEVE WHITING

DIRECTOR

Board

—

2 hrs/wk

Grants received

Showing 65 of 65

FromAmountPurposeYear
AMERICAN ONLINE GIVING FOUNDATION INC
$37K
GENERAL SUPPORT
2024
AMERICAN GIFT FUND
$25K
OPERATIONS
2024
R4 Foundation
$25K
ASSIST IN MEETING THE RECIPIENT ORGANIZATION'S EXEMPT PURPOSE
2024
PAYPAL CHARITABLE GIVING FUND
$24K
GENERAL SUPPORT
2024
THE MINNEAPOLIS FOUNDATION
$10K
DONOR ADVISED, HEALTH
2024
THE AARON & LILLIE STRAUS FDN INC 9830002
$2K
GENERAL
2024
THE BREIDEGAM FAMILY FOUNDATION
$1K
RESEARCH ON DESMOID TUMORS
2024
Arthur J Gallagher Foundation
$500
GENERAL EXEMPT PURPOSE
2024
AMERICAN EXPRESS FOUNDATION
$64
GENERAL SUPPORT
2024
AMERICAN TOWER CORPORATION FOUNDATION
$53
GENERAL PURPOSE
2024
R4 Foundation
$25K
ASSIST IN MEETING THE RECIPIENT ORGANIZATION'S EXEMPT PURPOSE
2023
THE MINNEAPOLIS FOUNDATION
$20K
DONOR-ADVISED, HEALTH
2023
AMERICAN ONLINE GIVING FOUNDATION INC
$16K
GENERAL SUPPORT
2023
THE AARON & LILLIE STRAUS FDN INC 9830002
$2K
GENERAL SUPPORT
2023
THE BREIDEGAM FAMILY FOUNDATION
$1K
RESEARCH ON DESMOID TUMORS
2023
AMERICAN EXPRESS FOUNDATION
$605
GENERAL SUPPORT
2023
JPMORGAN CHASE FOUNDATION
$200
GENERAL OPERATING SUPPORT
2023
AMERICAN EXPRESS FOUNDATION
$192
GENERAL SUPPORT
2023
AMERICAN EXPRESS FOUNDATION
$192
GENERAL SUPPORT
2023
AMERICAN EXPRESS FOUNDATION
$192
GENERAL SUPPORT
2023
AMERICAN EXPRESS FOUNDATION
$128
GENERAL SUPPORT
2023
HICKOK FAMILY FOUNDATION
$100
CHARITABLE
2023
EDWARD JONES FOUNDATION
$100
MEDICAL RESEARCH
2023
AMERICAN EXPRESS FOUNDATION
$64
GENERAL SUPPORT
2023
THE CIGNA GROUP FOUNDATION
$50
GENERAL OPERATING PURPOSE
2023
RAINWATER CHARITABLE FOUNDATION
$100K
FURTHERING THE DESMOID TUMOR RESEARCH FOUNDATION'S GROWTH THROUGH DEVELOPMENT
2022
R4 Foundation
$25K
ASSIST IN MEETING THE RECIPIENT ORGANIZATION'S EXEMPT PURPOSE
2022
AMERICAN ONLINE GIVING FOUNDATION INC
$16K
GENERAL SUPPORT
2022
THE BLACKBAUD GIVING FUND
$9K
GENERAL SUPPORT
2022
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$7K
For grant recipient's exempt purposes
2022
THE AARON & LILLIE STRAUS FDN INC 9830002
$2K
GENERAL SUPPORT
2022
THE BREIDEGAM FAMILY FOUNDATION
$1K
RESEARCH ON DESMOID TUMORS
2022
AMERICAN EXPRESS FOUNDATION
$626
GENERAL SUPPORT
2022
THE TAPESTRY FOUNDATION INC
$400
EMPLOYEE MATCHING PROGRAM- FURTHER 501(C)(3) CHARITABLE PURPOSE
2022
AMERICAN EXPRESS FOUNDATION
$200
GENERAL SUPPORT
2022
AMERICAN EXPRESS FOUNDATION
$192
GENERAL SUPPORT
2022
AMERICAN EXPRESS FOUNDATION
$192
GENERAL SUPPORT
2022
AMERICAN EXPRESS FOUNDATION
$192
GENERAL SUPPORT
2022
AMERICAN EXPRESS FOUNDATION
$128
GENERAL SUPPORT
2022
AMERICAN EXPRESS FOUNDATION
$70
GENERAL SUPPORT
2022
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$80K
For grant recipient's exempt purposes
2021
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$80K
For grant recipient's exempt purposes
2021
AMERICAN ONLINE GIVING FOUNDATION INC
$14K
GENERAL SUPPORT
2021
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$10K
For grant recipient's exempt purposes
2020
AMERICAN ONLINE GIVING FOUNDATION INC
$9K
GENERAL SUPPORT
2020
THE AARON & LILLIE STRAUS FDN INC 9830002
$2K
ALL GENERAL SUPPORT
2020
THE BREIDEGAM FAMILY FOUNDATION
$1K
RESEARCH ON DESMOID TUMORS
2020
AMERICAN EXPRESS FOUNDATION
$526
GENERAL SUPPORT
2020
The Bank of America Charitable Foundation Inc
$525
GENERAL SUPPORT
2020
HICKOK FAMILY FOUNDATION
$500
CHARITABLE
2020
AMERICAN EXPRESS FOUNDATION
$278
GENERAL SUPPORT
2020
AMERICAN EXPRESS FOUNDATION
$268
GENERAL SUPPORT
2020
AMERICAN EXPRESS FOUNDATION
$214
GENERAL SUPPORT
2020
AMERICAN EXPRESS FOUNDATION
$193
GENERAL SUPPORT
2020
AMERICAN EXPRESS FOUNDATION
$193
GENERAL SUPPORT
2020
AMERICAN EXPRESS FOUNDATION
$127
GENERAL SUPPORT
2020
SYNCHRONY FOUNDATION
$100
EMPLOYER MATCHING GIFT PROGRAM
2020
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$9K
For grant recipient's exempt purposes
2019
AMERICAN ONLINE GIVING FOUNDATION INC
$7K
GENERAL SUPPORT
2019
NETWORK FOR GOOD
$45K
Unrestricted
2018
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$13K
For grant recipient's exempt purposes
2018
ARTHUR T ERICKSON FOUNDATION
$1K
TO SUPPORT RESEARCH ON DESMOID TUMORS
2018
THE KATHY AND TOM MILLER FAMILY
$1K
GENERAL OPERATING
2018
The Yelp Foundation
$50
MATCHING CONTRIBUTION MADE BY EMPLOYEE OF YELP, INC.
2018
FIDELITY INVESTMENTS CHARITABLE GIFT FUND
$8K
FOR GRANT RECIPIENT'S EXEMPT PURPOSES
2017

Funded by

$635K from 24 funders · 65 grants · 2017–2024

Fidelity Investments Charitable Gift Fund

$207K · 7 grants · 2017–2022

Rainwater Charitable Foundation

$100K · 1 grant · 2022

American Online Giving Foundation Inc

$99K · 6 grants · 2019–2024

R4 Foundation

$75K · 3 grants · 2022–2024

Network For Good

$45K · 1 grant · 2018

The Minneapolis Foundation

$30K · 2 grants · 2023–2024

American Gift Fund

$25K · 1 grant · 2024

Paypal Charitable Giving Fund

$24K · 1 grant · 2024

Details

EIN611493017
NTEE codeH30
Subsection03
Ruling date2006-01
Formed2005
Employees6
Volunteers12
THE DESMOID TUMOR RESEARCH FOUNDATION INC — Mission, Financials & Grants Received | Grantivo