The Ryr-1 Foundation

Research workshop - the patient-led international research workshop is devoted exclusively to ryr-1-related diseases. This workshop provide a much-needed forum for the leading international ryr-1-rd experts and a group of affected individuals to share knowledge, exchange ideas, form collaborations, and develop new strategies for finding therapies. The workshop organizing committee includes a diverse group of researchers/clinicians in ryr-1-rd, members of the ryr-1 foundation's sab, and ryr-1-rd community representatives.

Family conference - the organization periodically hosts family conferences. These conferences are unique opportunities for affected individuals and families to meet physicians and scientists who specialize in ryr-1-rd, learn about ryr-1-rd, form friendships and develop a true ryr-1-rd community.