Disease & Medical Research
Amyotrophic Lateral Sclerosis Assn
ARLINGTON, VA
Total revenue
$68.6M
Total expenses
$82.2M
Net assets
$89.0M
Grants received
$22.4M
284 grants
EIN
133271855
Tax year
2024
Mission
The mission of the als association is to make als livable and cure it.
Programs
2 programs
The als association develops awareness and understanding of als and the work of the association among the general public, healthcare professionals, the scientific community and elected and other government officials. The als association's advocacy efforts help secure federal and state funding in support of als research and support for people living with als. The advocacy efforts include advances in legislation to help those living with als navigate insurance and other government programs.
Research programs - the association funds scientific research grants to doctors/scientists to find the cause and cure of amyotrophic lateral sclerosis (als).
Financials
FY 2024
Revenue
Expenses
People
43 listed
CALANEET BALAS
PRESIDENT AND CEO
$491K
37.5 hrs/wk
GREG MITCHELL
CHIEF FINANCIAL OFFICER
$288K
37.5 hrs/wk
PAUL INGHOLT
TRUSTEE (THRU 07/24)
—
2 hrs/wk
TOM CARROLL
TRUSTEE
—
2 hrs/wk
MICHAEL BENATAR
TRUSTEE
—
2 hrs/wk
PETER MCKOWN
TRUSTEE
—
2 hrs/wk
REBECCA MOSS
TRUSTEE
—
2 hrs/wk
KENTON VAN HARTEN
TRUSTEE (THRU 10/24)
—
2 hrs/wk
DOUGH BUTCHER
TRUSTEE
—
2 hrs/wk
WILLIAM SOFFELL
TRUSTEE
—
2 hrs/wk
CHRIS TONNIGES
TRUSTEE
—
2 hrs/wk
JESSE YBARRA
TRUSTEE
—
2 hrs/wk
BERNIE ZIPPRICH
TRUSTEE
—
2 hrs/wk
DANIELLE BOISVERT
TRUSTEE
—
2 hrs/wk
ANNETTE BOWMAN
TRUSTEE
—
2 hrs/wk
SCOTT KAUFFMAN
CHAIR
—
5 hrs/wk
SEDA GOFF
TRUSTEE
—
2 hrs/wk
KELLY HALL
TRUSTEE
—
2 hrs/wk
STEVE HANON
TRUSTEE
—
2 hrs/wk
EVE DRYER
TRUSTEE
—
2 hrs/wk
LARRY FALIVENA
CHAIR-ELECT
—
5 hrs/wk
NANCY LEAMOND
VICE CHAIR (AS OF 07/24)
—
5 hrs/wk
FRED M DEGRANDIS
VICE CHAIR (THRU 07/24)/TRUSTEE
—
2 hrs/wk
FRED M DEGRANDIS
TRUSTEE
—
5 hrs/wk
SANDRA PIERSOL
SECRETARY
—
4 hrs/wk
MARK STANCIL
TREASURER
—
4 hrs/wk
CONNIE HOUSTON
TRUSTEE
—
2 hrs/wk
EUGENE BRANDON PHD
TRUSTEE
—
2 hrs/wk
DAVID VAN DE RIET
TRUSTEE
—
2 hrs/wk
CHRISTI L KOLARCIK PHD
TRUSTEE (THRU 07/24)
—
2 hrs/wk
J THOMAS MAY
TRUSTEE
—
2 hrs/wk
MARK CALMES
TRUSTEE (THRU 07/24)
—
2 hrs/wk
PATRICK REEDY
CHIEF DEVELOPMENT OFFICER
$271K
37.5 hrs/wk
DEAN FEENER
CHIEF INFORMATION & TECHNOLOGY OFFICER
$265K
37.5 hrs/wk
BRIAN FREDERICK
CHIEF MARKETING & COMMUNICATIONS OFFICER
$250K
37.5 hrs/wk
LANCE SLAUGHTER
SVP STRATEGIC ALLIANCES & GOVERNANCE
$246K
37.5 hrs/wk
JENNIFER HJELLE
CHIEF COMMUNITY ENGAGEMENT OFFICER
$244K
37.5 hrs/wk
VICKIE LOBELLO
SENIOR VICE PRESIDENT ORGANIZATIONAL CHANGE
$237K
37.5 hrs/wk
KULDIP DAVE
SENIOR VICE PRESIDENT RESEARCH
$232K
37.5 hrs/wk
NICOLE ECK
CHIEF STRATEGY OFFICER
$231K
37.5 hrs/wk
KIMBERLY HARDING-MAGINNIS
SENIOR VICE PRESIDENT CARE SERVICES
$221K
37.5 hrs/wk
KEITH GARY
VICE PRESIDENT MISSION ACCELERATION
$219K
37.5 hrs/wk
NEIL THAKUR
CHIEF MISSION OFFICER
$195K
37.5 hrs/wk
Independent contractors
A NEW DIRECTION INC
SUPPORTIVE CARE
BARNES & THORNBURG LLP
ATTORNEY (LEGAL SERVICES)
YES& HOLDINGS LLC
PROFESSIONAL SERVICES IT
BEACON HILL SOLUTIONS GROUP LLC
TEMPORARY HELP
FAEGRE DRINKER BIDDLE & REATH LLP
LOBBYING CONSULTING
Grants received
Showing 200 of 284
Funded by
$22.4M from 125 funders · 284 grants · 2017–2024
$4.2M · 8 grants · 2018–2023
$3.9M · 8 grants · 2017–2023
$2.8M · 5 grants · 2020–2024
$1.7M · 12 grants · 2019–2024
$1.5M · 5 grants · 2018–2023
$1.2M · 5 grants · 2017–2023
$882K · 7 grants · 2017–2023
$675K · 8 grants · 2017–2024